Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

 The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

Social media

Linkedin: Linkedin.com/nystagmusnetwork  

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June

 

 

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and development manager
Telephone
01427 718093 01427 718093
E-mail
info@nystagmusnet.org
Website
Website address
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Where to go

Notes

virtual service on line and email with telephone support    web support 24/7

Other details

Costs

NIL  per year
Details
No charge for our services however membership is available but not a requirement for free support and information

Availability

Referral not required
Referral Details

self referral via email or telephone

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Last Updated

Last updated:

Get in touch with us

Family Information Service

family_information@sandwell.gov.uk
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